Alyssa Siegel, MD
Clinical Director, Transition to Adult Coordinated Care
Children’s Hospital of Philadelphia

The system and world is really not set up for these children to become adults.
Mom Natalie shares that there is a stigma of children with complex medical needs becoming adults.
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The system and world is really not set up for these children to become adults.

It takes work to find a provider who is willing and has the expertise

What does it take to support a child transitioning to adulthood? You need to care enough to take the time to understand, to communicate with other physicians, to do paperwork; to figure it out

Transitioning to Adulthood: Sometimes a new provider’s perspective can be helpful.

An MD: “I like to start the story from the very beginning. I want to feel like I was there with you … to get a glimpse of what it has been like.”
