Alyssa Siegel, MD
Clinical Director, Transition to Adult Coordinated Care
Children’s Hospital of Philadelphia
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The system and world is really not set up for these children to become adults.
It takes work to find a provider who is willing and has the expertise
What does it take to support a child transitioning to adulthood? You need to care enough to take the time to understand, to communicate with other physicians, to do paperwork; to figure it out
Transitioning to Adulthood: Sometimes a new provider’s perspective can be helpful.
An MD: “I like to start the story from the very beginning. I want to feel like I was there with you … to get a glimpse of what it has been like.”