Swati and Joseph
Swati and Joseph, parents to Caleb (8) and Canaan. Canaan died at 20 months from Noonan Syndrome.
![Mom: Through all of our painful experiences we do give birth to a strength](https://i.ytimg.com/vi/DmiBwkG3L-s/sddefault.jpg)
Mom: Through all of our painful experiences we do give birth to a strength
A mother shares her thoughts on having been “chosen” to mother a medically complex child.
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Mom: Through all of our painful experiences we do give birth to a strength
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My Hindu parents continued to support me in my Christian faith and in my decisions
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No regrets but some wishes.
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Faith and prayer helped with the cascade of decisions: trach, bronchoscopy, open heart surgery?
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The medical providers were respectful of our faith especially when it guided our decisions.
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Child Life Specialists helped the sibling understand why his brother was in the NICU.
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We let our Pastor know the diagnosis but waited to tell others.
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Deciding which parent stays in the NICU.
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