Swati and Joseph
Swati and Joseph, parents to Caleb (8) and Canaan. Canaan died at 20 months from Noonan Syndrome.

Mom: Through all of our painful experiences we do give birth to a strength
A mother shares her thoughts on having been “chosen” to mother a medically complex child.
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Mom: Through all of our painful experiences we do give birth to a strength

My Hindu parents continued to support me in my Christian faith and in my decisions

No regrets but some wishes.

The medical providers were respectful of our faith especially when it guided our decisions.

Faith and prayer helped with the cascade of decisions: trach, bronchoscopy, open heart surgery?

Child Life Specialists helped the sibling understand why his brother was in the NICU.

We let our Pastor know the diagnosis but waited to tell others.

Deciding which parent stays in the NICU.
