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Core Concepts
The Beginning
Advocating for Your Child
Understanding Interventions
Coping, Family and Relationships
End of Life and Bereavement
Explore
Not sure where to start?
Explore CPN Core Concepts
Learn More
Video Library
Audio Library
Guides
Pathways
Blog
Featured Family
Units
Diagnoses
Events
About
Not sure where to start?
Explore CPN Core Concepts
Learn More
Our Origin
Donors
Annual Report
Parent Champions
Speaking Engagements
Staff and Board
Mobile App
Contribute a Blog
Collaborations and Co-Authorship in Research
Medical Advisory Board
The Ilene Beal and Margaret S Lindsay Courageous Provider Awards (2024 Announcement)
Talk to CPN
En Español
Clinicians/Educators
NeuroJourney
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SWATI AND JOSEPH
Swati and Joseph
Swati and Joseph, parents to Caleb (8) and Canaan. Canaan died at 20 months from Noonan Syndrome.
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Mom: Through all of our painful experiences we do give birth to a strength
My Hindu parents continued to support me in my Christian faith and in my decisions
No regrets but some wishes.
Faith and prayer helped with the cascade of decisions: trach, bronchoscopy, open heart surgery?
The medical providers were respectful of our faith especially when it guided our decisions.
Child Life Specialists helped the sibling understand why his brother was in the NICU.
We let our Pastor know the diagnosis but waited to tell others.
Deciding which parent stays in the NICU.
Faith helped me on the day of my son’s diagnosis.
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