Parents of William, who died at age 8 from GM-1, and siblings Kyla and John
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I was drowning in grief but trying to avoid it.
A father talks about how the hardest part for him was acknowledging the grief. For the mother, it was the loss of her dreams for her son and the new day-to-day logistics.
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I was drowning in grief but trying to avoid it.
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Kyla was in grief counseling right off the bat.
I had to teach the teachers about the situation at home.
Kyla always introduced her friends to William.
How it has been for little brother John (age 4)
He taught her compassion and empathy towards others.
I can’t comfort them as much as I want to.
Be gentle with yourself as you parent your other children
The toughest part was learning that I needed to take a break.
He gave us the lead on what decisions to make.
The Pediatrician and Shared Decision Making: It was a true collaboration.
I didn’t plan anything.
We didn’t let ourselves think about the After, before.
His final moment was so peaceful and it was perfect for him.
It was the first time I exhaled in seven years.
He never gave up, so we learned from him.
One chapter is finished and another is about to begin.
I can’t comfort them as much as I want to.
The biggest transition is people not coming into the house everyday.