Nate and Katherine
Katherine and Nate, parents of Joey and younger son Benjamin (3). Joey was diagnosed in-utero with severe holoprosencephaly (brain malformation) and died 2 weeks after birth.
A diagnosis in-utero of holoprosencephaly.
First-time parents Nate and Katherine describe learning at the 20-week ultrasound that their baby had holoprosencephaly – his brain was not fully formed – and being referred to perinatal palliative care.
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A diagnosis in-utero of holoprosencephaly.
Considering the option of terminating the pregnancy: “We felt we wanted to let this little life be whatever God wanted it to be.”
Decision-making about quality of life, with no judgement: “The medical field has advancements that our ethics haven’t quite caught up with.”
Perinatal palliative care “got to know us and really heard our hearts. They counseled us through the birth practices.”
