CPN | Michelle and Joe

Michelle and Joe

Michelle and Joe, parents of Logan (11) and Matthew (8). Matthew has Batten Disease/CLN2 and was one of the first children in US to receive Enzyme Replacement Therapy beginning at age 4.

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Can we help you:

Your feedback matters!

We’re conducting a survey this month with parents and caregivers, and we’d love to hear from you. How have you used CPN? What do you find valuable? How can we improve?

As our way of saying thanks, all who finish the survey will receive a $10 Starbucks e-gift card.

If you haven’t already taken the survey, please do so by clicking the link below:

https://app.keysurvey.com/f/41646400/6a39/