Michelle and Joe
Michelle and Joe, parents of Logan (11) and Matthew (8). Matthew has Batten Disease/CLN2 and was one of the first children in US to receive Enzyme Replacement Therapy beginning at age 4.
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Clinical Trials: Our son is on the cutting edge. He IS the data. (CLN2 / Batten)
Clinical Trials: Our son and family’s road to the trial. No man’s land. (CLN2 / Batten)
Clinical Trials: We really felt like we had the golden ticket. (CLN2/Batten)
Clinical trials: Weighing the risks; A Leap of Faith (CLN2 / Batten)
Clinical Trials: You adjust your life and just do it. (CLN2 / Batten)
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