Megan
Megan, Executive Director Sanfilippo Children’s Foundation. Mother to Isla (10) and Jude (8), Sanfilippo Syndrome
Clinical Trials: Whatever decision you make, it is going to be right for you.
In this video, a mom talks about how advancements in science have made it so that some families will be faced with choosing which trial to participate in. She discusses pursuing all the available options but emphasizes feeling confident that when the time comes to choose, you will make the decision that is right for you.
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Clinical Trials: Whatever decision you make, it is going to be right for you.
Clinical Trials: Once treated the road ahead is unknown.
Clinical Trials: As she aged my expectations about what treatment would mean adjusted.
Clinical Trials: Two children screened, one qualifies – antibodies exclude the other.
Clinical Trials: Which child? The decision was made for me.
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