Megan
Megan, Executive Director Sanfilippo Children’s Foundation. Mother to Isla (10) and Jude (8), Sanfilippo Syndrome
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Clinical Trials: Whatever decision you make, it is going to be right for you.
Clinical Trials: Once treated the road ahead is unknown.
Clinical Trials: As she aged my expectations about what treatment would mean adjusted.
Clinical Trials: Two children screened, one qualifies – antibodies exclude the other.
Clinical Trials: Which child? The decision was made for me.
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