Kerri
Mother of Kai, who died from an inoperable brain tumor at age 2

The palliative Care team helped me preserve his quality of life.
A mom shares how the palliative care team was there to help her preserve her son’s quality of life. The team listened, respected what she reported, and reminded her of her stated care goals when she was questioning or wavering. “It was invaluable to hear my wishes mirrored back to me.”
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The palliative Care team helped me preserve his quality of life.

A conversation about Anticipatory Grief

Wanting desperately to know what it looks like.

Instantly I felt I was on the other side.

There’s a shift that happens emotionally.

Decision-Making: My biggest fear was getting caught in the medical machine.

Child illness impacts a marriage in different ways.

You can change your mind re treatment and care plan.

Pros and Cons of Social Media

Creating a safe place for each person to express their feelings.

I need his life to be good NOW.

Think about what you need.

At the end of the day, it’s my kid and others can’t take that on.

Parents worry they’re going to have regrets, but if it’s the right decision …

Hospice streamlines everything.

How long was this part of the journey going to take?

People need to do what feels right to them.

I knew I wanted to donate his tumor to research.

Time passing is really hard.

I still talk to my network all the time.

It’s another sort of loss.

An Update with Kerri, 4 Years Later

People wonder how they are changed by the death of their child.

How is this my life?

Enough is enough.

Am I going to be able to go on?

Preparing … or Not.

It’s hard to imagine your life without your child.

Decisions start from Day One.
