Joanne (mom) and Lexi (sister)
The decision to place Barry in a residential facility was hard, especially on sister Lexi. Mom, Joanne speaks with Barry's pediatric palliative care doctor about the factors that contributed to the decision and the emotions attached to deciding it was the right place for Barry.
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CPN's In the Zoom Room: What Siblings Want
Anticipatory Guidance: Dr. Hauer helped me anticipate how the end might look, coming on slowly.
Siblings and a Residential Home: “She was heartbroken and mad.”
Full Video Chat Conversation with Alexis Levine, on being Barry's sister.
