Jenn & Joe
Parents of Mallory, who has Juvenile Tay-Sachs and siblings Matthew and Melanie. At the time of this interview, Mallory was 6. She is now 9 years old.
I don’t know what I’m going to do when I don’t have to worry.
A mother and father stress how different and difficult it will be when they don’t have to leave a date to check on Mallory. It is hurtful to imagine.
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I don’t know what I’m going to do when I don’t have to worry.
Helping Siblings Cope, From the Parents
There’s a fine line between hope and acceptance.
Focus on the Here and Now
