Jenessa
Jenessa, mother of Zach (15), Alex (12) and Zoe (9). Alex has SMA Type 1.
Two families, Two Paths
Selected clips from interviews with 2 families of children with SMA Type 1. One family elected to have a trach for their child, the other family elected not to have a trach for their child.
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Two families, Two Paths
You have to make a decision and they’re both bad choices.
We’ve had some scary moments with the trach.
Spinal Fusion Surgery: Deciding to do it
