Janna
Janna, mother of Henley, who has had a heart transplant. Henley contracted enterovirus myocarditis which in rare instances can cause serious cardiac side effects.
My newborn’s emergency Berlin heart and transplant: It’s not like we had a choice.
Mom of daughter Henley discusses the beginning of her family’s journey and learning that her daughter would need to be put on a Berlin heart while awaiting a heart transplant.
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My newborn’s emergency Berlin heart and transplant: It’s not like we had a choice.
In the hospital: I felt like nothing really made me feel better.
One thing after another: every medical issue requires a solution that may cause another problem
Finding most of my support from other cardiac parents who already get it.
