CPN | Emily and Darren

Emily and Darren

Parents of Parker (15) Christopher (4) and Jacob (2). Christopher has Hurler Syndrome (MPS Type 1) and has had a stem cell transplant.

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Can we help you:

Your feedback matters!

We’re conducting a survey this month with parents and caregivers, and we’d love to hear from you. How have you used CPN? What do you find valuable? How can we improve?

As our way of saying thanks, all who finish the survey will receive a $10 Starbucks e-gift card.

If you haven’t already taken the survey, please do so by clicking the link below: