Aubrey
Son De’Aubrey was born extremely premature and lived with multiple complexities and diagnoses, including epilepsy. He passed away at age 14.
![A mother on what it takes to get listened to by your child’s physician](https://i.ytimg.com/vi/3VG2fr6M0iI/sddefault.jpg)
A mother on what it takes to get listened to by your child’s physician
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A mother on what it takes to get listened to by your child’s physician
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A parent’s advice to clinicians re Unconscious Bias: “See people as these unique, beautiful beings, learning from them, and giving them that respect.”
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Maturing into parenting a medically complex child: You don't even realize how you're walking but you're just moving some kind of way.
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"I did not get it right every day, and I'm still learning to give myself grace with the process "
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Finding my voice to be my son’s voice.
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Learning to let go of the therapies that weren’t serving him.
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Extubating my son: “My heart wanted a few more years but he was so tired and I had to accept that. I didn’t want him to suffer anymore.”
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Grief in Bereavement: “Sitting through the state of loneliness.”
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