Aubrey
Son De’Aubrey was born extremely premature and lived with multiple complexities and diagnoses, including epilepsy. He passed away at age 14.
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A mother on what it takes to get listened to by your child’s physician
A parent’s advice to clinicians re Unconscious Bias: “See people as these unique, beautiful beings, learning from them, and giving them that respect.”
Maturing into parenting a medically complex child: You don't even realize how you're walking but you're just moving some kind of way.
"I did not get it right every day, and I'm still learning to give myself grace with the process "
