Grandparents / Extended Family
Navigating the grandparents: It’s an adjustment for them.
The mom of of a little boy diagnosed with Polymicrogyria at age 4 months describes the first few months after his diagnosis, how grief showed up in her body, and how the grandparents reacted, helped, and struggled. The parents were living with the grandparents at the time and that had pros and cons. They note that the Grandparents section of CPN was a helpful resource to refer to the grandparents – a place for them to get some advice because the parents didn’t have the bandwidth.
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Navigating the grandparents: It’s an adjustment for them.
Delivering the diagnosis to her mother: “I wanted to control the blast because I was the epicenter.”
A grandmother on her daughter: “She said, ‘don’t cry in front of me, ever.”
My mother: "The biggest support she gave me was tracking me from afar."
