Spirituality and Religion
For many people it’s a huge crisis of faith.
Pediatric and grief psychologist Nancy Frumer Styron and a father talk about the role of spirituality and faith in the parent experience. A severe diagnosis for a child stirs up parents' belief systems, including a lack of belief: why me? I feel abandoned. Where will my child's spirit go? I didn't pray hard enough. For others, their faith doesn't waver.
Chaplain: I ask parents that believe in God, “What do you think God wants for you?”
A hospital chaplain discusses how parents wrestle with their relationship (and deal-making) with God, and her belief in the power of parental prayer. "How do you pray when you think you and God aren't on the same page?"
It’s not fair and I’m at that point where I’m not sure I believe.
The mom of 2 sons with Mito speaks honestly about her struggles with belief in God. God must have thought I was a badass if he gave me all this. What God would want us to go through this? We're doing an incredible job and I'm so proud of us and we're finding our way, but It's Not Fair.
It wasn't good but we felt that God was going to help us deal with everything.
Parents of a 15-year old diagnosed with aggressive leukemia talk about the immediate strength and constant peace they got from their deep deep faith in God, including during the difficult periods of decision-making with doctors. "We put God right in front. God was guiding us. We put ourselves in God's hands."
Christian music just really helps me to stay balanced. God has a plan.
The mom of a 12-year old with SMA Type 1 talks about how her faith helps her get through. "God has a plan and someday it will make sense. It's a beautiful tapestry that gets woven together." "I can't always be positive, but I'm always growing."