Working with the Medical Team

All parents want to protect, provide and help their children thrive. But this is a particularly poignant aspiration for those who are faced with difficult, complex decisions to make on behalf of their child. In particular, it is common for parents to worry about their choices. They fear that they will later experience regret for the decisions they have made. They want to feel that they are making the best decisions they can, given the information they have available to them. Families also want to make these decisions with clinicians who understand and regard their child as a unique individual, not solely as one whose diagnosis will drive the decision made on their behalf.