While your child may have a rare condition requiring a team of specialists, the primary care pediatrician also has a role to play, and for many families, it can be the most important one. The pediatrician is often the child’s first doctor, and, especially in instances where there are other children, it is an active and ongoing relationship that can have a long-term impact on the family feeling supported, understood, prepared, and empowered.

Listen, learn and ask questions during this hour as several parents of medically-complex children having rare conditions are joined with their child’s primary pediatrician to talk about optimizing the care partnership.