BE CONNECTED
Donate
Donate
Home
Learn
add
Core Concepts
The Beginning
Advocating for Your Child
Understanding Interventions
Coping, Family and Relationships
End of Life and Bereavement
Explore
add
Video Library
Audio Library
Guides
Pathways
Blog
Featured Family
Units
Diagnoses
Events
About
add
Our Origin
Donors
Annual Report
Parent Champions
Partners
Speaking Engagements
Staff and Board
Mobile App
The Ilene Beal and Margaret S Lindsay Courageous Provider Awards (2024 Announcement)
Contribute a Blog
Collaborations and Co-Authorship in Research
Medical Advisory Board
Talk to CPN
En Español
Clinicians/Educators
NeuroJourney
Learn
Not sure where to start?
Explore CPN Core Concepts
Learn More
Core Concepts
The Beginning
Advocating for Your Child
Understanding Interventions
Coping, Family and Relationships
End of Life and Bereavement
Explore
Not sure where to start?
Explore CPN Core Concepts
Learn More
Video Library
Audio Library
Guides
Pathways
Blog
Featured Family
Units
Diagnoses
Events
About
Not sure where to start?
Explore CPN Core Concepts
Learn More
Our Origin
Donors
Annual Report
Parent Champions
Partners
Speaking Engagements
Staff and Board
Mobile App
The Ilene Beal and Margaret S Lindsay Courageous Provider Awards (2024 Announcement)
Contribute a Blog
Collaborations and Co-Authorship in Research
Medical Advisory Board
Talk to CPN
En Español
Clinicians/Educators
NeuroJourney
HOME
>
BLOG
>
AUTHOR
>
RONDA THORINGTON
Posts by Ronda Thorington
Courageous Parents Network Blog
7/10/2023
Letting Go
I have been on the ‘parenting a child with a rare disease’ journey for 12…
Start by telling us how we can help.
I am a caregiver seeking guidance to help me advocate for my child
I am a caregiver wanting to support my family and other relationships
I am a clinician seeking resources for my patient families and colleagues
