2/13/2024 A Rare FriendshipMy friend Liz lives ten miles north of me. The journey between our homes can…
A therapist’s perspective: Supporting your child with a rare and fatal disease.During my son Lucas’s life, I often struggled with how many therapy sessions to schedule.…
Navigating therapies when your child has a rare and fatal diseaseI shifted Lucas in my arms, picking up his feeding pump backpack in one hand…
September in the Time of GriefThe streets near my home in Seattle are checkered with apple trees, and the smell…
The Endurance We Didn't ChooseBefore Lucas was born, before he was diagnosed with two rare diseases, and before he…
