12/30/2022 It Hurts: My Year End Wish For All of UsWords fail and yet I feel compelled to write today, December 30, 2022. In the…
The Child's Primary Care Pediatrician Can Make ALL the DifferenceFebruary is birthday month in our home. Twenty-five years ago this week, our eldest child…
She awaits my return all the time. This May 9 marks the 20th anniversary of my daughter Cameron’s death. It is also…
A Dose of Courage I am really tired. Mentally. Physically. Energetically. I am tired of politics and of…
Going there: Peeking at End of Life Envisioning a child’s death is essentially impossible. Wretched and mind-stopping, the prospect may feel like…
Our Nurses' NamesReciting names is a gesture of summoning. When we recite names, we bring awareness to…
A Blessing for Courage and an InvitationI founded Courageous Parents Network to empower, support and guide parents and families going through…
Suspended Animation: Journaling to Move, Writing to Heal“Our world as we knew it ended 45 days ago with our daughter’s diagnosis. And…
You have already shown just how capable and strong and resilient you are.Dear Courageous Parents Network: I fear not having healthcare available to us [for my son]…
