A mom: I needed to be told ‘This is what your son needs.’ When there is parent-doctor alignment and trust, a parent can hear and accept that.

Kate, a mom of two sons born with cardiomyopathy, and her sons’ heart doctor, Dr. Elizabeth Blume, talk about shared decision-making and the balance between strong parent advocacy and strong medical counsel. “The more the parent has that fierce advocacy, actually the more they need the clear guidelines about what their child needs.”