CPN | Clinical Trials: A mom: I didn’t worry about disease progression then and I don’t post trial.

Clinical Trials: A mom: I didn’t worry about disease progression then and I don’t post trial.

In this video, a mother of two sons with Duchenne Muscular Dystrophy, both of whom now receive drug treatments, explains how she did not really worry about the disease progression; how there were no guarantees in expected timelines pre-treatment and there are none post.  She also talks about her son’s peers dying and the guilt associated with participating in a trial.