A Mother's Testimonial: How Courageous Parents Network helped a family do the unimaginable.

In January 2017, courageous parent Sarah Shaw joined Executive Director Blyth Lord to give Pediatric Grand Rounds at University of Vermont’s Children Hospital. Sarah spoke eloquently about the role that CPN played in her family’s journey with her daughter Emerson, who was diagnosed with Type 2 Gaucher Disease in October 2015 and died in June 2016.