CPN | A Canavan mom on learning gene therapy was on the horizon and getting information from the company. “Information is being shared the way it needs to be shared.”
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A Canavan mom on learning gene therapy was on the horizon and getting information from the company. “Information is being shared the way it needs to be shared.”

The mother of a 16-month old talks with Courageous Parents Network about how she first learned of potential gene therapy for her daughter and how the Sponsor company is keeping the Canavan community informed.