Saying No to Trach
Considering a trach: Wanting to do everything but it would have been too much for him.
The mother of a son with Neonatal Marfan Syndrome discusses their decision-making process surrounding doing a tracheostomy and deciding that even though they wanted to do everything they could to intervene, the procedure would ultimately do more harm than good.
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Considering a trach: Wanting to do everything but it would have been too much for him.
Decision-Making: the gift of time to figure out what your child needs and what you can handle. (CPAP vs Trach)
Shared Decision-Making: Parent and Provider (Trach)
Decision-making re Trach: CPAP and doing everything possible not to get a trach for our daughter.
