Saying No to Trach
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Decision-making about a trach for my son: palliative care appreciates that it can be a loving decision not to do everything.
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Considering a trach: Wanting to do everything but it would have been too much for him.
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Decision-Making: the gift of time to figure out what your child needs and what you can handle. (CPAP vs Trach)
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Shared Decision-Making: Parent and Provider (Trach)
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Decision-making re Trach: CPAP and doing everything possible not to get a trach for our daughter.
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A mom on every night with the CPAP (not Trach): parents learn what they can tolerate.
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I just couldn’t see our son with the tubes. It was just the way it was.
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