Saying No to Trach

Considering a trach: Wanting to do everything but it would have been too much for him.
The mother of a son with Neonatal Marfan Syndrome discusses their decision-making process surrounding doing a tracheostomy and deciding that even though they wanted to do everything they could to intervene, the procedure would ultimately do more harm than good.
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Considering a trach: Wanting to do everything but it would have been too much for him.

Decision-Making: the gift of time to figure out what your child needs and what you can handle. (CPAP vs Trach)

Shared Decision-Making: Parent and Provider (Trach)

Decision-making re Trach: CPAP and doing everything possible not to get a trach for our daughter.

A mom on every night with the CPAP (not Trach): parents learn what they can tolerate.

I just couldn’t see our son with the tubes. It was just the way it was.
