Exploring the Idea of a Trach

CPN's In the Zoom Room: The Empowered Parent, Considering Tracheostomy
CPN’s Live Zoom Meeting with guest doctors Renee Boss, Carrie Henderson and Ben Wilfond on their research and goals of standardizing how families receive information and guidance – including from other families — about the tracheostomy option for their child.
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CPN's In the Zoom Room: The Empowered Parent, Considering Tracheostomy

Tracheostomy: Structural Problems vs. Worsening Conditions

Tracheostomy: Families don’t want the diagnosis to determine their decisions. Need vs. Option

Tracheostomy / Trach: Two Children, Two Moms, Two Different Decisions

Two families, Two Paths

You have to make a decision and they’re both bad choices.

Exploring the idea of a Trach: “No one could give me a guarantee that it would extend the quality of her life.”

An MD provides overview of conditions when a trach would be considered

Trach: the outcome for the child, outcome for the parents. The two parents aren’t always on the same page.

Considering a trach: The parents’ threshold to -- see their child struggle breathing; to manage the trach.

Parenting a Medically Complex Child: Decision Making Re Tubes and Surgeries

Decision Making about the trach: Would talking to another parent be helpful?

I felt like I had a clock ticking down in my head.

You have to try to do what’s best for all your children.
