Exploring the Idea of a Trach
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CPN's In the Zoom Room: The Empowered Parent, Considering Tracheostomy
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Tracheostomy: Structural Problems vs. Worsening Conditions
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Tracheostomy: Families don’t want the diagnosis to determine their decisions. Need vs. Option
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Tracheostomy / Trach: Two Children, Two Moms, Two Different Decisions
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Two families, Two Paths
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You have to make a decision and they’re both bad choices.
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Exploring the idea of a Trach: “No one could give me a guarantee that it would extend the quality of her life.”
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An MD provides overview of conditions when a trach would be considered
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Trach: the outcome for the child, outcome for the parents. The two parents aren’t always on the same page.
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Considering a trach: The parents’ threshold to -- see their child struggle breathing; to manage the trach.
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Parenting a Medically Complex Child: Decision Making Re Tubes and Surgeries
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Decision Making about the trach: Would talking to another parent be helpful?
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I felt like I had a clock ticking down in my head.
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You have to try to do what’s best for all your children.
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