Tracy Larson Benvenuti, MSW, LCSW
Social Worker and Program Coordinator for
Notre Dame Pedi Pals Program
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The value of home-based palliative care is we see the family at home.
We provide parents with hope and also the courage they need to take the journey.
We try to make sure they are as prepared as they can be for parents.
What we can expect in the final days.
When we can educate families about what to expect, they are less fearful.
Educating parents about the Pros and Cons of the decisions can help with their regrets
I really want to hear the parents' perspective, What is their story?
Talking directly with parents: If we would just come out and say ...
Creating memories that siblings will remember for the rest of their lives.
Caring for the child allows parents to feel pride and a sense of control.