Natasha Henner, MD
Neonatology, Pediatric and Perinatal Palliative Care
Lurie Children's Hospital of Chicago/Northwestern Memorial Hospital
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A Physician defines Perinatal Palliative Care; and how families get referred.
Trisomy 13 and 18 as an example of some parents now asking, “What if we did try to push a little further?”
A life-limiting fetal diagnosis: Trisomy 18 as an example of supporting parents’ choices.
Perinatal palliative care: “Parents can hold that [uncertainty] space better than we clinicians do.”
“I don’t use the terminology of quality of life. It labels something that is very difficult to label.” A perinatal doctor on listening to what is in the parents’ heart and hearing where they are headed.
The uncertainty of fetal diagnosis is dramatic. We don’t box parents into a decision.
A life-limiting fetal diagnosis: Conversations about terminating the pregnancy; Palliative care as a bridge to maternal fetal medicine.
A life-limiting fetal diagnosis: Empowering but not burdening the parents as decision-makers.
Medical Uncertainty: What the data says vs. what is going to happen with this particular baby.
An MD on addressing a parent’s fear of making the wrong decision for their child.
An MD notes the pros and cons for parents of social media and special interest groups
A Perinatal MD: We don’t really know who these parents are and how they will respond later; nor do they.
Shared Decision-Making: When parents ask the doctor for a recommendation.
Potential pathways for unborn babies with a life-limiting fetal condition: a perinatal palliative care doctor describes