Jamie Ring
Patient Advocate, Biotech Industry
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Everyone who participates in rare disease research is a medical hero
Understanding the Why Behind Inclusion and Exclusion Criteria
The hard truth is that not everyone will qualify or meet the inclusion criteria
Informed consent. Take it seriously.
Balancing hope and realistic expectations in clinical trials.
Managing Expectations: Trials are a learning process and timelines change
Clinical Trials: A Strong, Unified Disease Community Helps. Stay active and engaged, even if your subgroup doesn't yet have a therapy.
Trial Participation, balancing risk and reward, hope and expectation, commitment and community
The Personal aspects of a clinical trial, including relocation and the impact on other children
Should I participate in a clinical trial?
How can I best advocate for my child?
Community input is valued but every trial design is unique
The role of a Patient Advocate at a biotech company
A Patient Advocate explains the Placebo controlled trial.
Endpoints and the patient perspective in designing trials
For the patient that doesn't qualify, there are other ways to participate
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