Jamie Ring
Patient Advocate, Biotech Industry
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Everyone who participates in rare disease research is a medical hero
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Understanding the Why Behind Inclusion and Exclusion Criteria
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The hard truth is that not everyone will qualify or meet the inclusion criteria
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Informed consent. Take it seriously.
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Balancing hope and realistic expectations in clinical trials.
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Managing Expectations: Trials are a learning process and timelines change
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Clinical Trials: A Strong, Unified Disease Community Helps. Stay active and engaged, even if your subgroup doesn't yet have a therapy.
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Trial Participation, balancing risk and reward, hope and expectation, commitment and community
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The Personal aspects of a clinical trial, including relocation and the impact on other children
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Should I participate in a clinical trial?
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How can I best advocate for my child?
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Community input is valued but every trial design is unique
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The role of a Patient Advocate at a biotech company
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A Patient Advocate explains the Placebo controlled trial.
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Endpoints and the patient perspective in designing trials
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For the patient that doesn't qualify, there are other ways to participate
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