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Core Concepts
The Beginning
Advocating for Your Child
Understanding Interventions
Coping, Family and Relationships
End of Life and Bereavement
Explore
Not sure where to start?
Explore CPN Core Concepts
Learn More
Video Library
Audio Library
Guides
Pathways
Blog
Featured Family
Units
Diagnoses
Events
About
Not sure where to start?
Explore CPN Core Concepts
Learn More
Our Origin
Donors
Annual Report
Parent Champions
Speaking Engagements
Staff and Board
Mobile App
Contribute a Blog
Collaborations and Co-Authorship in Research
Medical Advisory Board
The Ilene Beal and Margaret S Lindsay Courageous Provider Awards (2024 Announcement)
Talk to CPN
En Español
Clinicians/Educators
NeuroJourney
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DIANE MCKENNA YASEK RN BSN
Diane McKenna-Yasek, RN, BSN
Neuromuscular Research Nurse, UMass Medical School Clinical Trial Coordinator
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Clinical Trials: Recruitment and Pre-Screening
Clinical Trials: a Study Coordinator reflects on the Emotional Costs
Clinical Trials: Weighing the Risks and Benefits
Study Coordinator Talks About Commonly Asked Questions - Site Visits and Access
The Screening Visit: You Will Be Asked to Sign the Informed Consent Form, the most important document.
Clinical Trials Sponsors, Internal Review Boards
Clinical Trials: Staggered enrollment, Cohorts and Dose Escalation
Clinical Trials: The Role of Natural History Studies
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