Sherri
Mother of Rachel. Rachel has Canavan disease and at the time of this interview was 16 and Jessica was 17. They are now 19 and 20 respectively.
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Rare disease in children: Voices of the Siblings
Follow up with Sherri: Rachel is now thriving in a long-term care pediatric residence.
Being their mom is a joyful thing.
If the child is asking the question, it’s because they need to know.
