Sarah and Steve
Sarah and Steve, parents of Emerson, who died at age 16 months from Gaucher Type 2.
Finding Hope
Parents of an infant with Gaucher Type 2 share how they came to see that there really COULD be hope in the face of a fatal diagnosis and the evolution of what they hoped for. “We went from running away from things to running towards things for Emerson.”
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Finding Hope
The Diagnostic Odyssey: It never occurred to me that it would be fatal.
I couldn't imagine how much pain Sarah was in. I could only go along with it.
The doctor was very gentle and also clear that there was no treatment at this time.
