Naomi
Mother of Noah (age 14).
Noah was born very premature and lives with multiple complex medical conditions.
![A traumatic beginning at 26 weeks. Mom: “As long as you're willing to fight, I'm here to fight with you.”](https://i.ytimg.com/vi/kbDO1bhKEkY/sddefault.jpg)
A traumatic beginning at 26 weeks. Mom: “As long as you're willing to fight, I'm here to fight with you.”
The mother of a medically complex 14-year-old talks about the first few months with her son and the complications that arose during that time as well as the moment she and her son decided to fight.
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A traumatic beginning at 26 weeks. Mom: “As long as you're willing to fight, I'm here to fight with you.”
![](https://i.ytimg.com/vi/7TOEHhm2WkE/hqdefault.jpg)
“Noah is a trainwreck on paper but he is so much more than that.” A mother’s high alert vigilance and advocacy for 14 years
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The mother of a medically complex child’s advice to clinicians: Don’t call me ‘mom’ … Don’t ask me questions you can find answers to in the chart … and then some.
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A Complex Care Parent: I love palliative care.
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Decision-making about a trach for my son: palliative care appreciates that it can be a loving decision not to do everything.
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Parenting a medically-complex child: I tell him, ‘This is between you and God. I’m just the one in charge of helping you become the best you can be.’
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The antidote to regret: the mantra – ‘These are loving decisions.’
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The Role of a Mother’s Faith during her Son’s 14 Years.
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