Naomi
Mother of Noah (age 14).
Noah was born very premature and lives with multiple complex medical conditions.
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A traumatic beginning at 26 weeks. Mom: “As long as you're willing to fight, I'm here to fight with you.”
“Noah is a trainwreck on paper but he is so much more than that.” A mother’s high alert vigilance and advocacy for 14 years
The mother of a medically complex child’s advice to clinicians: Don’t call me ‘mom’ … Don’t ask me questions you can find answers to in the chart … and then some.
A Complex Care Parent: I love palliative care.
