Michelle M
Michelle, mother of Alex (age 7) and Julianna. Julianna had a severe form of Charcot-Marie-Tooth disease and died at age 5.
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Julianna’s beginning: Charcot-Marie-Tooth disease
Palliative Care: I was able to unburden my worries to one person … and then the care conference allowed us to talk about everything.
A Mom on deciding about a feeding tube for her child
A mom on the decision to put her daughter in hospice: we knew we could revoke it at any time and go back to the hospital. … And then she said ‘No Hospital.’
