LJ and Catherine
Parents of Rachel, who has leukodystrophy, age 22-months, and siblings Alex, Caitlyn, Joshua, Abigail, Simeon, and Michael
1 / 18
Rare disease in children: Voices of the Siblings
Helping Siblings Cope, From the Parents
I’m like, I don’t need a bucket list right now.
MD: Parents--Don’t underestimate the importance of your own goals and values
