Laura and Dave
Parents of Hadley (3) and Alden (1). Alden has Polymicrogyria.
![Mom’s instinct is right: A diagnosis of Polymicrogyria](https://i.ytimg.com/vi/qBTshLK3-tI/sddefault.jpg)
Mom’s instinct is right: A diagnosis of Polymicrogyria
Dave and Laura, parents of two children — one of whom is a one-year old boy with Polymicrogyria — introduce themselves, their family, and the journey to their son’s diagnosis at age 4 months, including the pediatrician’s not accepting mom’s instinct that something was wrong.
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Mom’s instinct is right: A diagnosis of Polymicrogyria
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Navigating the grandparents: It’s an adjustment for them.
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Navigating Friends
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Marriage: Finding touchstones for the relationship
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The feeding tube and palliative care
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Becoming OK with the uncertainty of his life expectancy
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I did a deep dive into Self-Care: It was my method of surviving. It was either falling off a cliff or rising.
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His sister plays with him as though he were a typical sibling. It’s an inspiration to try and emulate how she sees him.
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Connecting with the PMG in the early days post diagnosis: Take some, leave some
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Finding support from an older couple – different diagnosis but commonalities-- that took us under their wing
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In the Room: Processing Anticipatory Grief and Reframing Hopes and Expectations
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It’s terrifying thinking about having another child: We know there are sharks in the water.
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The early months post-diagnosis: grief, therapy, identity
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Moving through grief and finding a new voice: Laura reads two of her poems
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It’s important to remind ourselves we’ve come a long way; we’ve gotten stronger.
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