Laura and Dave
Parents of Hadley (3) and Alden (1). Alden has Polymicrogyria.
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Mom’s instinct is right: A diagnosis of Polymicrogyria
Navigating the grandparents: It’s an adjustment for them.
Navigating Friends
Marriage: Finding touchstones for the relationship
The feeding tube and palliative care
Becoming OK with the uncertainty of his life expectancy
I did a deep dive into Self-Care: It was my method of surviving. It was either falling off a cliff or rising.
His sister plays with him as though he were a typical sibling. It’s an inspiration to try and emulate how she sees him.
Connecting with the PMG in the early days post diagnosis: Take some, leave some
Finding support from an older couple – different diagnosis but commonalities-- that took us under their wing
In the Room: Processing Anticipatory Grief and Reframing Hopes and Expectations
It’s terrifying thinking about having another child: We know there are sharks in the water.
The early months post-diagnosis: grief, therapy, identity
Moving through grief and finding a new voice: Laura reads two of her poems
It’s important to remind ourselves we’ve come a long way; we’ve gotten stronger.