June
June MSW, LICSW, ACHP-SW, and mother of Alissa (24) and Katie (28). Katie is medically complex and likely has Rett Syndrome.
Finding Support: "Other parents showed me that there was hope."
June MSW, LICSW, ACHP-SW, mother of Katie (28), who is medically complex and likely has Rett Syndrome, describes how she found support in the early years to cope and have hope, especially from fellow parents. “Other parents get it.”
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Finding Support: "Other parents showed me that there was hope."
“Where I got support varied depending on the time and situation”
Out-of-home placement for our medically complex child gave us more time for our other child.
Group housing for a medically complex child: Moving to a new state; finding a new group home.
A parent's tips for finding group housing for a medically complex child/adult.
More parent perspective, tips about finding out-of-home placement for a medically complex child.
Considering options for out-of-home placement: Finding the right fit
Group housing for a medically complex child: Each family has to make its own decision.
When your community doesn’t understand. “There is a lot of pressure on parents to provide homecare.”
A medically complex child ages out: the disheartening challenge of transitioning to adult services.
When a medically complex child ages out: Guardianship and medical decision-making.
Co-Parenting a medically complex child, and guardianship.
Parenting a medically complex child, and deciding to have another child.
Medically complex children and siblings: a mother shares her daughters' early and evolving relationship and how she parents.
Undiagnosed: “28 years and we still don’t know exactly”
Parenting a medically complex child as a single parent: the positives and negatives.
Parenting a medically complex child, and finding balance: Not every decision is critical.
Undiagnosed: “You can’t put your life on hold until this resolves because this may never resolve”
Parenting a medically complex child and keeping the adult-age sister involved.
Parenting a medically complex child: Letting go of the PUSH and the expectations.