June
June MSW, LICSW, ACHP-SW, and mother of Alissa (24) and Katie (28). Katie is medically complex and likely has Rett Syndrome.
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Finding Support: "Other parents showed me that there was hope."
“Where I got support varied depending on the time and situation”
Out-of-home placement for our medically complex child gave us more time for our other child.
Group housing for a medically complex child: Moving to a new state; finding a new group home.
A parent's tips for finding group housing for a medically complex child/adult.
More parent perspective, tips about finding out-of-home placement for a medically complex child.
Considering options for out-of-home placement: Finding the right fit
Group housing for a medically complex child: Each family has to make its own decision.
When your community doesn’t understand. “There is a lot of pressure on parents to provide homecare.”
A medically complex child ages out: the disheartening challenge of transitioning to adult services.
When a medically complex child ages out: Guardianship and medical decision-making.
Co-Parenting a medically complex child, and guardianship.
Parenting a medically complex child, and deciding to have another child.
Medically complex children and siblings: a mother shares her daughters' early and evolving relationship and how she parents.
Undiagnosed: “28 years and we still don’t know exactly”
Parenting a medically complex child as a single parent: the positives and negatives.
Parenting a medically complex child, and finding balance: Not every decision is critical.
Undiagnosed: “You can’t put your life on hold until this resolves because this may never resolve”
Parenting a medically complex child and keeping the adult-age sister involved.
Parenting a medically complex child: Letting go of the PUSH and the expectations.