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Core Concepts
The Beginning
Advocating for Your Child
Understanding Interventions
Coping, Family and Relationships
End of Life and Bereavement
Explore
Not sure where to start?
Explore CPN Core Concepts
Learn More
Video Library
Audio Library
Guides
Pathways
Blog
Featured Family
Units
Diagnoses
Events
About
Not sure where to start?
Explore CPN Core Concepts
Learn More
Our Origin
Donors
Annual Report
Parent Champions
Speaking Engagements
Staff and Board
Mobile App
Contribute a Blog
Collaborations and Co-Authorship in Research
Medical Advisory Board
The Ilene Beal and Margaret S Lindsay Courageous Provider Awards (2024 Announcement)
Talk to CPN
En Español
Clinicians/Educators
NeuroJourney
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JOY BRUCE CORA
Joy and Bruce
Parents of Corinne (Cora), who has Trisomy 18 and was 3 months at the time of this interview. Cora is now 3 years old.
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Child illness impacts a marriage in different ways.
Pros and Cons of Social Media
We Are Going to Take One Day at a Time
I Want Straightforward Answers
It becomes about a good fit.
You Can Say, "That's Enough."
She is an individual, not a diagnosis.
I believe in the power of positive thought.
Don’t talk to me about Karma.
Instead of dreading things, we are cherishing them.
I get control by being open about her situation.
It’s important not to lie to them.
Being with my baby makes me feel better.
There will be more. Don’t live your life dwelling.
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Joy and Bruce
View / Download Interview transcript
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