Jerris
Father of Faith. Faith had Osteosarcoma with multiple complications.
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Osteosarcoma in an adolescent and ‘Total Pain’: There were all these compounding issues
“Once you established trust with Faith, and respected her, she would do anything for you.”
“We had a pinky promise that I would always be very honest with her. I sat on the bed and told her that she was dying.”
The role that a dad can play in advocacy: “We have to create an avenue for dads.”
“We were trying to prepare her for becoming her own advocate. You need to be forthright.”
A palliative care MD: “We need to try to understand what the parent's motivation is; and not shy away from pain.”
A dad to fellow parents: “Be present, have a voice, trust but validate.”
“It was a journey of contradictions.” Regrets and no regrets.