Jenn M
Mother to Austin(20), Max(17), James(11) and Norah(8). Austin & Max have Duchenne Muscular Dystrophy & James has Primary Immune Deficiency
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Clinical Trials: A mom: Sometimes if feels like there are “Haves” and “Have Nots”
Clinical Trials: A mom: I didn’t worry about disease progression then and I don’t post trial.
Clinical Trials: A mom on assessing risk when her child has a treatable disease
Two Sons, A Spontaneous Mutation and Two Diagnoses of Duchenne Muscular Dystrophy
Two sons with Duchenne Muscular Dystrophy and No Preconceived Notions About the Diagnosis
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