Jacqui
Jacqui, Mother of Tommy (2 ½) and Claire (1). Claire has aspiration and sleep apnea.
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I was devastated -- Suddenly my baby needs a feeding tube. No more breast-feeding
I had never met anyone whose child had a G-tube. I felt so isolated but I had to decide.
A mom on asking for and accepting support from her community. “We’re parents, not super-heroes.”
Decision-Making: the gift of time to figure out what your child needs and what you can handle. (CPAP vs Trach)
Googling images of babies with trachs – Can I imagine that for my child?
A mom to medical providers: “For you, you do it all day long. For us, our world just got turned upside down.”
Shared Decision-Making: Parent and Provider (Trach)
A mom: “No matter how blindsided you feel, you will get through it. You are strong enough.”
Decision-making re Trach: CPAP and doing everything possible not to get a trach for our daughter.
A mom on every night with the CPAP (not Trach): parents learn what they can tolerate.
Apnea, aspiration: Suddenly learning my baby is having trouble breathing, and we don’t know why