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Core Concepts
The Beginning
Advocating for Your Child
Understanding Interventions
Coping, Family and Relationships
End of Life and Bereavement
Explore
Not sure where to start?
Explore CPN Core Concepts
Learn More
Video Library
Audio Library
Guides
Pathways
Blog
Featured Family
Units
Diagnoses
Events
About
Not sure where to start?
Explore CPN Core Concepts
Learn More
Our Origin
Donors
Annual Report
Parent Champions
Speaking Engagements
Staff and Board
Mobile App
Contribute a Blog
Collaborations and Co-Authorship in Research
Medical Advisory Board
The Ilene Beal and Margaret S Lindsay Courageous Provider Awards (2024 Announcement)
Talk to CPN
En Español
Clinicians/Educators
NeuroJourney
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HAYDEE AND ORLANDO
Haydee and Orlando
Parents of Kristie, who died at age 16 from leukemia, and siblings Kimberly and Danny.
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It wasn't good but we felt that God was going to help us deal with everything.
When you have God on your side, you see everything different.
“Can you pray for my family? And can you pray for the nurses?”
We said, “We want to be part of the Solution.”
It was very difficult to disagree with the doctors because we’re not doctors.
They never complained about being with her at the hospital late at night.
Sometimes we let others stay with Kristie so we could be alone with our other children.
You are my Rock.
It was beautiful.
After people see how we handled death, they see death differently.
Keeping good memories and remembering her in positive ways.
Kristie inspired people to look at life differently.
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Haydee & Orlando Video Transcripts
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