Frank and Jeanette
Parents of Alex (13) and Frankie Jr (21).
Frankie has multiple progressive conditions including the DNMT1 mutation.
1 / 12
Frankie: He was the life of the party; loved costumes and school.
Frankie: Losing his voice but still communicating
Mom: I know that he has completed everything in life. I look at the glass as half full.
“I can’t save my son but I can make his life better.”
