Emotions and Questions
Clinical Trials: A mom: Sometimes if feels like there are “Haves” and “Have Nots”
In this video, a mother of two sons with Duchenne Muscular Dystrophy talks honestly about how often in rare disease it feels like there are “haves” and “have-nots” in the community. She talks about both the division trials can create in a community but also the support you can gain.
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Clinical Trials: A mom: Sometimes if feels like there are “Haves” and “Have Nots”
The hard truth is that not everyone will qualify or meet the inclusion criteria
Clinical Trials: Inclusion and Exclusion Criteria; Age and Ability of the child are often key factors
Clinical Trials: a Study Coordinator reflects on the Emotional Costs
