Video Library

El Legado de Mi Hijo

Ritual

Duelo

Involucrando a los Hermanos

Fin de la Vida

Cómo ayudan los cuidados paliativos

Trasladándose para obtener la mejor atención

Identidad Como Padre

Traqueotomía

Cuando es un Tiempo Largo e Indefinido

Trabajando con el Equipo Médico

About CPN

Covid-19

The Beginning

Telling the child's story

The Road to Diagnosis

Responding to a New Diagnosis

Anticipatory Grief

A PreNatal/Fetal Diagnosis

NICU

How Palliative Care Helps

When a Parent Is Also a Clinician

When it’s a Long, Indefinite Timeline

Working with the Medical Team

Pain Management

What Matters Most to Your Family

Building Your Support Network

Understanding the Sibling Experience

Self Care

The Support of Other Parents

Professional Support

Your Circle Will Change

Unconscious Bias in Medicine

The Hospital

Heart Transplant

Financial Planning for the Fully Dependent Child

Shifting Expectations

Hope and Redefining Hope

Living with Uncertainty

Medical Home: Equipment, therapies, home care

Shifts in Baseline

Clinical Trial

Trial Basics

Trial Design

Qualifying for a Clinical Trial

Decision Making

After Participation

Emotions and Questions

Spinal Fusion Surgery

Exploring the Spinal Fusion Option

Multidisciplinary Approach

Preparing for Spinal Surgery

Post-Op

Life at Home Post SF Surgery

Declining Spinal Fusion

Fear of Regrets

Transitioning to End of Life: Home, Hospital, Hospice

Tracheostomy

Exploring the Idea of a Trach

Life at Home with a Trach

Saying No to Trach

Preparing for Tracheostomy Surgery

Shared Decision Making

Diagnosis

For Dads

Feeding Tube

Twins

Being a Sibling

Supporting Siblings

Talking about Diagnosis and Shifts in Baseline

Common Worries When Caring for Your Other Children

Talking about End of Life

Caring for Bereaved Siblings

From the Siblings (in their words)

The Marriage/Partnership

Writing as Healing

Yoga and Meditation

Grandparents / Extended Family

Genetic Counseling/Family Planning

Taking Care of Yourself

Considering Out-of-Home Placement

Guardianship / Transitioning to Adulthood

What is transition planning

Anticipating the Challenges

Understanding the Benefits of Adult Providers

Working with Your Care Team to Plan the Transition

Guardianship

Spirituality and Religion

Transplant

Issues of Control

Solo Parenting

Pregnancy After Child Loss

Child Life, how it helps

Preparing for End-of-Life

Anticipating End-of-Life: Worries and Emotions

Advance Care Planning (ACP): What and Who

Home/Hospice or Hospital

The Last Days/What Does End-of-Life Look like, Really?

Supporting the Siblings

What Comes After Death: Making Arrangements

Talking to Your Child about Their Wishes

Ritual

Bereavement

Early Bereavement

Finding Support in Bereavement

Grief Changes Over Time

The Family (including siblings) in Bereavement

Making Meaning/Legacy

Identity as a Bereaved Parent

Working with the Medical Team/ Goals of Care

Finding Support

Anticipating Being Bereaved

Making Memories

Making Difficult Decisions: How Palliative Care Helps

Making Arrangements

Talking to Your Child about Their Wishes

Looking at End-of-Life: When the Time Comes

Finding Your Child’s Legacy

Finding Meaning and Transformation

Your Identity as a Parent

Imagining the Future